Katie Steedly’s first-person piece [The Unspeakable Gift] is a riveting retelling of her participation in a National Institutes of Health study that aided her quest to come to grips with her life of living with a rare genetic disorder. Her writing is superb.
In recognition of receiving the Dateline Award for the Washingtonian Magazine essay, The Unspeakable Gift.
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Spit and Spaghetti #1

Neurodivergence. Rest. Nepotism.
Three recent pitches sent into the universe.
Misconceptions about genes and gender: Fieldnotes from a “deletion”
I am a woman living with Turner syndrome. Though not usually included in discussions of neurodivergence — by definition, many people with living with genetic conditions like Turner syndrome process information and social situations differently and are therefore neurodivergent. I understand genes as a unique and individual human blueprint expressed differently in each of us. I understand gender to be more complex and fluid than X’s and Y’s. This article will explore the vigilance required to remain healthy while living with a genetic condition, the shame (and subsequent silence) that follows a diagnosis, and the narrative of “normal” within a desire to belong.
Vigilance and Rest: Everyday Life with Turner syndrome
I have been thinking about vigilance. What does it mean to keep vigil? What is the relationship between vigilance and wide-awakeness? Between vigilance and rest? I live with mosaic Turner syndrome. My condition requires vigilance. This article will explore the concept of vigilance, couple the concepts of wide-awakeness and vigilance, emphasize the relationship between vigilance and rest, and suggest how we might achieve vigilant rest.
How My Parents Got Me A Job — A Gen X Perspective on Nepotism
I am 53. I have lots of degrees and worked in world-class institutions doing some important things. My parents never got me a job. They did, however, make me the person I am, who has gotten jobs, reached goals, and found happiness along the way. I don’t bash born-on-third-base-thinking-I-hit-a-triple — or — seduced-by-a-belief-that-rugged-individual-bootstraps-are-all-it-takes thinking.
I simply want to suggest that no one achieves anything alone. We all stand on the shoulders. We all learn about hustle, passion, and effort from someone. I am old enough to deeply understand the real value of relationships and connection in all I do. My parents taught me that. I value education, learning, and curiosity. My parents taught me that, too. They also taught me I can be whatever I want to be — not in the superficial, bumper sticker way but in the roll up your sleeves, get started, figure it out, and keep going way. This is about long-term success beyond open doors, applications completed on your behalf, or a last name. This article will explore nepotism from the perspective of a profoundly grateful Gen X woman who knows we rely on one another, build and create together, and are better when we open ourselves up and invite others in.
About Katie

From Louisville. Live in Atlanta. Curious by nature. Researcher by education. Writer by practice. Grateful heart by desire.
Buy the Book!
The Stage Is On Fire, a memoir about hope and change, reasons for voyaging, and dreams burning down can be purchased on Amazon.